I’ve told you before about having to do a bowel program every day night, so with that in mind, let me walk you through my evenings.
On a perfect night:
7:00 – Get the boys going cleaning up their room
7:30 – Cleanup done. Ty takes the boys for tooth brushing, etc. I go set up for the bowel program
7:45 – Read with the boys, pray, tuck them in
8:10 – Get in my bed so Ty can help me stretch my legs (and doesn't have to wait till after the bowel program to do it)
8:20 – Back out of bed; Head to the bathroom
8:21 – Transfer to shower chair, start bowel program
(Bowel program starts with a suppository, wait 15 minutes, stim, wait 15 minutes, stim again, repeat as necessary)
8:25 - end of bowel program (between stims) –
- Change my catheter bag to the larger overnight bag
- Floss teeth
- Remove makeup
- Change into pajama shirt
- Binge watch Netflix or Amazon Prime
8:55 – Clean up
9:05 – Get back in wheelchair
9:06 – 9:45 -
- Continue binge watching
- Use face toner
- Take nighttime meds
- Clean out daytime catheter bag and let soak with vinegar
- Brush teeth
- Mouthwash
- Clean off bowel program tools
- Drain daytime bag
- Store daytime bag and replace bowel program tools
- Take out hair clips
- Plug in iPad
- Gather supplies needed for the morning
9:55 – Get pajama pants on
10:00 – 11:00 - hang out and talk with Ty a little while I simultaneously...
- Change the dressing around my supra public catheter insertion site
- Lotion arms, hands, and feet
- Take melatonin
- Get set up in my sleeping position
- Read
- Go to sleep
Let dinner get on the table late, or the kids’ cleanup to take more time, or me need a third stim, and the night gets later in a hurry. I simultaneously love the bowel program for helping me keep a handle on my bowel movements and hate it for the chunk of time it takes out of every day. There are many nights I don't get to sleep till after midnight, and then have to wake up around 7 AM, 6 AM during the school year. So farewell, girls' night out! I miss you already!